Philadelphia March 8 2010

Hi Guys,

We are back in Philadelphia this week. March 8 - 13th

This is me at the Optometrist appointment.

I saw many familiar faces,
Anna from London and Petros from Greece

Tuesday and Wednesday I stayed at the apartment with Grandma and Scott, while my mom attended lectures.  Thursday and Friday we go back to the Institute to get my new program for the next six months.
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I am now reading at above High School level, can speed read faster than my mom can turn the pages.  They think I am pretty smart I suppose that's kinda cool.  My mom  is going to  look into MIT and Harvard college study information on line so I don't get bored.  I am starting my program soon as we get settled into our new place. I will be doing leg patterning and a few other therapies.  I grew taller and gained a little weight.  I am supposed to work my way up to eating everything 75% from my mouth and I am excited about that.  Eating is hard for me, I am just not sure how to work my tounge and everything.  It sure is fun trying though!  Shhhh ( I had pancakes the other night) Yummy!  Mom is getting a recipe so I can have them more often.

Thanks for looking guys! I will see you soon! - Love Micah

Philadelphia August 22 -- 29th 2009

Hi guys,

The plane trip was great. The flight here was at night, the skys were pitch black and all the lights lit up the sky. I was good on the plane because I like to watch everything, it keeps me very busy.

Monday Morning August 24th 2009,

This was our first day at the institute and first stop is the optometrist. Thats me and my grams on top - great picture mom! First off I met a new friend Anna, she is from the U.K. she is one of a twin. She is so beautiful, she said hi to me with facilitated communication, I was excited because it showed me how easy it was to use FC to communicate with people. Then while we were waiting for the doctor to come in we saw Calem, he is another friend I met last trip, he is from

La Verne California.

First they checked to see how my eyes were. Last time my left eye was weaker than my right.. This time my left eye was considerably better so they said I probably won't need to be wearing my patch on my right eye anymore during the day. So we are taking these results back to the institute, I can't wait to see Anna and all my friends again.

Monday afternoon.

We all wait in the big room at the institute for our turn to do our different activities. We were called in by Kathy for our history and evaluation. I am pretty excited because mom got the green light to start facilitated communication with me. Kathy asked me a few questions with it, Grandma Cary cried when she watched me point to the letters to form the word I wanted to communicate! I guess I am ready for it. So much to learn! Now with practice I can tell mom what I want and what I am interested in learning.

Results of the evaluation: I am reading independently at a 9 year old level. My developmental age is 21 months (only 15 months behind). I received an understanding victory! I love it guys!

I will post more later, this is so exciting.. We get to learn my new program today.

Tuesday and Wednesday I spent the day with Grams, we went for walks and read books.

Thursday

Today we learned my new program - it is very detailed so I will try to summarize all of the information.

Since I am reading at a nine year old level and my program instructor this time Kathy Myers has established that I can read regular book print which is great because mom was making all of my books herself.

I get to read all of my own educational material independently now. Today Kathy let me read a page of a Junior High School Algebra book indepently. It was about Pythagorean Theorem which I had never heard about. I scanned the page and then she asked me to tell her the Theorem I had just read about and I spelled it on my FC board. Mom and Grams were just beside themselves, I could see them covering their faces so I could not see. Later I heard mom telling someone she was so amazed she couldn't help but giggle and she didn't want to distract me. I love it all and I have been so happy this week, because this means so much to me. This has given me a way to communicate with my family.

I will write more later I am tired...

Back To Philadelphia week of August 24th!

Hi Guys!

I am getting my lab work done and getting my muscles toned to go back to Philadelphia soon.. Next trip is planned for Week of August 24th 2009! I am excited I get to see all the friends I have met there and I am so healthy right now I am pumped!

Mom is teaching me stuff! I am so smart you have no idea! Just ask me stuff!

People think because I can't talk it doesn't mean I don't know how to communicate.. You just need to learn how! I anwer Mom and Grandma Cary all the time! Just need to know how to ask!

I had my first cousin Reece arrive in April and she is so beautiful.. At first I was so jeolous because everyone loved her so much and her legs moved and mine didn't... I told mom I didn't like her! But when my mom asked me again later I decided I liked her. She is truly beautiful and it isn't her fault my legs don't move and she is so pretty how can I not like her.. Plus I am going to get my own legs to move because I need to protect her.. She crys alot! I kinda laugh at her like Baby Reece why are you crying Don't be afraid I will protect you.. sshhhh...... and I smile!

Philadelphia March 7th - 14th 2009

I am in Philadelphia right now.

I have been sort of grumpy for a few months because I kept throwing up all my food and stuff.
But my mom worked real hard at finding a new diet for me. I will explain that later because that's alot of words.

I have been in Philadelphia since Saturday with mom, dad and Grams (Grandma Cary) and by Wednesday I was smiling like the old me.
Grams took me to the book store and got a book because I was a good boy and I took my nap. Yep she just told me if you are good boy and take a nap we will go for a walk and then to the bookstore. I decided it is better to just cooperate and get the book, it is frustrating for me. I have all these words and thoughts inside my head, but I don't have any way of getting them out. Mom decided that she will start back giving me my choice board that way it will be much easier for me to communicate. I can breathe good, but it takes alot of breathe and energy to point to that choice board, but I am gonna keep on trying.
I was so proud of myself I was given two seven step math equations the first day at the Institute and I got both answers correct. That was great, I like making everyone proud.
I got two story questions correct too! Gotcha guys! I am gonna be really really smart one day.. Ha ha, go go Micah.... Well I will show you all my new stuff when I get back thats all for now.. - Micah Lee -

Out for a walk

Hi guys, just out for a walk with my mom. I was in the hospital all last week, it is okay my mom was with me and Grandma Cary & dad visited me every day so it was fun. Now I am home feeling much better. The doctors said I was dehydrated.. I know the real reason was that one of my doctors prescribed formula that was too concentrated for my weight.. Hmm.. those doctors.. you always have to check up on them, oh and plus I kept throwing it up- maybe I was a little sick too. They put my feeding tube back in for a while. It is a good thing too, that way I can concentrate on getting very big muscles and doing therapy and stuff. I still eat, but I don't get so worried anymore because sometimes I just get tired.

Respiratory Patterning

This is me falling asleep while Mom and Grandma Cary do my respiratory patterning, it makes me feel so relaxed! I didn't like it at first but now I love it!

It's helping me learn how to breathe better!

Scooting on my couch with a new hair cut

This is kind of different I scooted all the way down my couch!



Check out my new haircut - My Mom cut it with her new clippers she got for Christmas while Grandma held me. Now mom can keep my hair all cute and stuff! I think my hair cut makes my ears look kind of big! Oh well they are my ears got to love them. I hear lots of good stuff with them.