Micah started having infantile spasms (seizures) at approximately 3 months. The neuroligist's attempts at trying to control them with phenobarbital hasn't been successful. A couple of weeks ago they added topamax in hopes of slowly weaning him off the phenobarbital and getting the seizures under control. Micah still continues to have seizures several times through the day and night. Yesterday at his Doctors appointment the Neurologist called in an order for steroids which will be injected twice daily. They wanted to exhaust all medications before giving him the steroids. I have read many success stories about the steroid treatment for the seizures. With the phenobarbital and topamax his brain is sedated which interferes with his stimulation treatments Stephanie performs. The steroids will not sedate him and there are no long term side affects associated with the steroids. This is all a little intimidating as Stephanie is expected to learn how to give him the steroid injections. Micah continues to coo and turn over from his stomach to his back on his own. His legs are a little looser, yet he does not bend them on his own. Baby Micah is an angel..
Please continue to pray for Micah for his little brain to be healed, for his sucking to improve and for these seizures to stop.
For those who want to read about Infantile spasms click on the link below.
